I read your story in the Sunday Express and feel very deeply for you and your family.
My father also suffers from primary progressive M.S., although his condition is not yet as advanced as your husband Peter. I am sure we have battled many of the same problems as yourselves.
I was horrified to find out that the council was considering taking away Peter's essential care. My father also requires home care and would deffinatelly not cope with out it.
As I therefore feel I have some understanding of your situation I would like to let you know that my heart goes out to you and your family, you are not alone. Although im sure it often feels like an up hill struggle it is worth it and you are fighting for a very worthwhile cause.
Thousands of people will have read your article yesterday, which im sure will help your case.
I wish you the very best of luck and wish I could help.
My husband, Pete is 35 years old and terminally ill with primary progressive multiple sclerosis. Cardiff County Council don't want to pay for his care at home any more. Our daughter Catrin (8 and a half) has never known a father who can move or talk but wants him to stay at home 'because he's my Dad'.
This is a diary of my fight to allow my husband to die at home with his family.
1 comment:
Hi Siaron
I read your story in the Sunday Express and feel very deeply for you and your family.
My father also suffers from primary progressive M.S., although his condition is not yet as advanced as your husband Peter. I am sure we have battled many of the same problems as yourselves.
I was horrified to find out that the council was considering taking away Peter's essential care. My father also requires home care and would deffinatelly not cope with out it.
As I therefore feel I have some understanding of your situation I would like to let you know that my heart goes out to you and your family, you are not alone. Although im sure it often feels like an up hill struggle it is worth it and you are fighting for a very worthwhile cause.
Thousands of people will have read your article yesterday, which im sure will help your case.
I wish you the very best of luck and wish I could help.
Tom
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